Taken from Chris Lawton's (dad) post of Rafe
Rafe was a big Stoke fan and I think that Chris's post says it all
View AttachmentThank you so very much for your support. This is the last bit to share on if you can, and to check everyone is on the same page…to remember My Treasure tomorrow - Especially in the 14th minute when/IF all goes well, the roof will be off The 365!
For those interested and especially why - People will think what’s this all about…So here’s my smallest way of explaining the Hell my son endured through 16+ months of misery…
My Son took ill with what would become an extremely rare rash at the end of Feb 22. This rash ravaged his body from top to tail, inside out, where Stevens-Johnson Syndrome TENS took hold.
Then at the Alder Hey, the few weeks of ‘so called’ recovery from this condition, he suffered several infections where the doctors said he was ‘the sickest boy in the country’ nearly dying on several occasions.
In Gods way 😂 he laughably started fo recover from this disgusting attack IE his skin started to recover, BUT not one drop of recovery from My Boy’s inner being!
So having fought off infection after infection with a temperature on one occasion of 43.7 degrees, brain seizures, heart stopping moments and blood pressures extremities that were off the scale that required an induced coma….We were left with our beautiful son totally and so completely wrecked with his total nervous system wiped out.
What followed was 14/15 months of an imprisoned boy who could do absolutely nothing for himself! NOTHING - No movement, blind, the car wreck of all car wrecks in Hell on a rainy day - That being Critical Illness Polyneuropathy - Translation…totally debilitated from head to toe but where he could still move his head and was regularly cognitively there from time to time reacting many times to my family and I with smiles.
Sadly on the 4th July I had to let him go as God wasn’t listening and didn’t take advantage of the months I brought him in hope.
Please share on in the name of my amazing son Rafe Lawton. And to clap the stadium roof off in the 14th minute X